You say 'incurable' like it's a bad thing
I have been diagnosed with myeloma. It is incurable, but median survival is about five years already, and the treatment is improving so much that it will probably be six before I contribute to the statistics.
Also, because this cancer is what they call a 'remission/relapse' condition, I do know that if the treatment works well I may have a three year period that is nearly symptom-free, when I can go off and see the world and really fill my boots.
And even when it comes back, there are phases of treatment that they can still use which control the disease fairly well before it eventually is impossible to control. So I can put off all of my book reading and film-watching for the last year or so.
But think about it: many people find it hard to have structure in their lives, they prevaricate, they don't go out to do things because they will do it later, they make poor choices, hang out with the wrong people, marry the wrong people.
Well I have a great structure to work with. I have nine months of very interesting but fairly unpleasant treatment and I then emerge from my chemo chrysalis as a combination of butterfly and old-man-in-a-hurry. I will be party animal number one. It's going to be great. But then of course I will die.
I'm not complaining. Seems to me like this incurable has a lot going for it.



Hi - sorry not to have seen you in the holidays - and given you a hug. I’ll hopefully have a hug with you soon but hey ho it’s usually a year so I’m booking it in for next year right now !
ReplyDeleteI had the best time - 5 nights with two grands 13 and 8 - every night I said let’s stay up and look at the stars - and every night we went to bed exhausted before the stars came out ! I went back for 5 nights on my own - omg what a treat. The new refurbished hut is a palace. I know people pay thousands for therapy retreats like that. Omg. Let me know if you would like to use it sometime. We have lots of extended family who clamour to use it now - especially the youth as there’s a solar panel and phones can be charged ! So can lie in bed listening to the sea and scroll on the phone forever 😂
Sending love and healing vibes - Jo 😘
Wow, yes to the hut when the crowds die down 🙂. I will still be here - like Sandy Denny - when those fickle friends have left. And yes, why on EARTH would anyone not see how glorious and unique this place is! I was sitting many mornings waiting for dawn and not even reading, just thinking and grinning my head off. Loved it all and glad you did too.❤️
DeleteHi Declan
ReplyDeleteI'm so glad you contacted me. It's great you got to do your US adventure. Where are you based now?
I'm still in the French Alps.Currently looking at sunshine and zero temperatures outside. I'm planning to be in the UK for Christmas. Then again mid January to late February. I'm very happy to keep in touch, though I have no idea what sort of info would interest you.
Hello Jackie, and good to catch up on WhatsApp, and will continue on there 🙂
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